Caring for my mother with dementia took a huge toll on me.
To say I was not prepared is a gross understatement. But how could I be?
I was doing a lot of research on how dementia affects the patient, but there was no mention of how it would affect me, the caregiver.
There was no warning as to how my mom's behaviour, disposition and character would change for the worst.
It was abusive, nasty and heartbreaking.
As her dementia got worse, I thought I was losing my mind. To keep my sanity, I journalled. (Honesty, I just wrote on whatever I got my hands on and filed the paper away).
I was too embarressed to tell people what was really happening.
Besides, who would believe me?
Then I thought I couldn't possibly be alone in this.
So I decided to share what worked for me and what didn't.
I recorded a video of myself when I was at my wits end. For me, that was quite a desperate action to take. I had never video'd myself before with the intention of reaching out to other family caregivers of dementia.
If any of this resonates with you, I invite you to check out my book that is written with you in mind. I know you're stressed out - so every chapter is short, simple and humourous.with lessons that I learned that during or after the event. Everything is true.
It'll take you from the very beginning of my mom's possible diagnosis (they weren't sure yet) to finally getting her into a long term nursing home. I hope you'll find reading my book helpful and light-hearted!
Go to www.amazon.ca to order your personal copy. I'd love to receive your feedback!
Watch my youtube video just before I was diagnosed with caregiver burnout.
I recorded myself at a point just before I was diagnosed with caregiver burnout by a hospital Emergency Physician.
I'm not a pretty sight,
but it's reality. Don't let it happen to you.
In the video, I promised to reach out to other caregivers to help prevent what happened to me, emotionally and physically.
I didn't realize how difficult it would be to review my experience and pull my book together. The emotional pain was greater than I thought. Caregiving for family IS SO PERSONAL.
Here's my 'burnout' video!
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